Avery’s Army has raised over $5,000 so far for the Cystic Fibrosis Foundation’s 2022 Great Stride’s walk. The amount is a testament to how Avery Stromeyer’s friends, family and community have rallied behind the Luling 3 year old since her Cystic Fibrosis diagnosis.
“She was diagnosed at just 9 days new … it was a diagnosis that none of us were expecting … when Avery was diagnosed three years ago, the medium age of someone living with Cystic Fibrosis was 32,” Avery’s mother Amanda Stromeyer said. “With new drugs and research now it’s 50 plus. If that has any statement as to what your donations go towards then it’s priceless … this money goes to scientific research and allowing my child to have the longest, healthiest life possible.”
Amanda said Avery’s daily regime includes taking five pills every time she eats – which equates to approximately 600 pills a month.
“She also takes a multivitamin, artificial pancreatic enzymes and a CFTR modulator drug daily,” Amanda said. “She also does compressive vest therapy. It’s been a great stride thus far, and we have a lifetime to go. Overall she’s in good health … she’s a champ about taking the medicine … it’s just a part of who she is.”
Each year the Cystic Fibrosis Foundation hosts the Great Stride’s event, the foundation’s largest national fundraiser, to help raise awareness and fund research for Cystic Fibrosis. This year the event will be held on May 14, and fundraising is open until the end of the year. For more information or to donate to Avery’s Army, visit http://fightcf.cff.org/goto/AverysArmy.
Be the first to comment